Opinion : Letters to The Province, June 16, 2021.

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Re: Long-suffering long-haulers need more services, research to end symptoms, advocate says.

I recently read the article about COVID-19 long-haulers in our local newspaper, the Regina Leader Post. I think there are a few elements missing from this story, which have largely been ignored for decades and should be addressed.

I, along with 500,000 Canadians, suffer from myalgic encephalitis (a.k.a. chronic fatigue syndrome or ME). Another 400,000 have fibromyalgia, a condition similar to ME. In total, this is 900,000 Canadians with just these two conditions. People who have multiple sclerosis are numbered around 100,000 just for comparison.

The symptoms that go along with both of these disorders are very similar to COVID long-haulers. A majority of fatigue cases can also be traced to a virus and post-viral syndrome. I developed this syndrome after an Epstein Barr virus in 1984, when I was 16. I’m now 53 and my symptoms continue to get more severe.


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I wasn’t diagnosed for almost 20 years, because there was virtually no support or education to diagnose and treat this illness. The medical community and media denigrated this problem and labelled it with names such as “the yuppie flu”. They also perpetuated the myth that it was a psychological problem, not an organic illness. There have now been over 900 studies proving it’s not psychological in nature, yet it’s still being ignored by the medical community and the media.

My heart goes out to the people who are suffering from long-term COVID symptoms. However, I feel that people with chronic fatigue syndrome and fibromyalgia have been thrown under the bus, as we’re still waiting for the research and support for a diagnosis and treatment, which are already available to COVID patients. Some of us have been waiting decades for support.

Where there are tens-of-thousands with long-haul COVID, there are hundreds-of-thousands with chronic fatigue syndrome and fibromyalgia. We have suffered longer and in greater numbers than COVID long-haulers.

I can’t help but think that if ME and fibromyalgia had been taken more seriously decades ago, the people who contracted long-haul COVID would have more effective options for treatment. I can only hope that treatments developed for long-haul COVID will be offered to people with my condition as well.

I realize I have no voice or platform, but I would hope that the media could relay this predicament to the public to try to rectify this injustice.


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Howard Brass, Regina 

Bravo to Squamish for gondola repair

Yes, the Sea to Sky Gondola is up-and-running again. Unfortunately, the culprit or culprits who sabotaged the gondola cable twice haven’t been apprehended as of yet, even with the large reward offered for information leading to their arrest. But they will not deny us the pleasure of viewing nature from below and above.

So, let’s all get behind this “little town that could” with extra strong security, rebuild and offer yet another natural scene of our beloved province.

Ruth Enns, Vancouver

Letters to the editor should be sent to provletters@theprovince.com.

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